Sunday, April 15, 2012

More info on SCT if interested

Here is a list of others who have gone thru a Stem Cell Transplant if you are interested in reading and viewing their process. Dr. Burt's team does SCT for more than 20 auto immune diseases and has been doing them for over 20 years. The following are just CIDP patients, like me:

 Jennifer Osman   (SCT April 2005) 1st one ever to do it for CIDP

Kevin Devery  (SCT Oct 2007)
great videos :
 Jerry Burns  Phoenix AZ  (SCT Feb 2009) 

Tannia Munoz  (SCT June 2009)
great videos 
Lynn Mac Donald  (SCT Sept 2009)
Alice Dicroce  (SCT Oct 2009)
^^ you can find lots more info here about SCT and which diseases they are working on here

Rossana Roa  (SCT June 2010) 
Jim Danhakl   (SCT March 2010)

Sharon Mackwell  (SCT Sept 2010)

Robert Postel  (SCT May 2011)

Here is a list of other auto immune diseases being treated by SCT:

- Scleroderma (Systemic Sclerosis)

- Inflammatory Bowel Disease (Chrohn's disease, ulcerative colitis)
- Systemic Lupus Erythematosus (SLE)
- Polymyositis - Dermatomyositis - Evans syndrome
- Hashimoto's thyroiditis
- Chronic inflammatory demyelinating polyneuropathy (CIDP)
- Graves' disease
- Autoimmune hemolytic anemia
- Autoimmune blistering diseases
- Autoimmune lymphoproliferative syndrome
- Myasthenia gravis
- Psoriatic arthritis
- Wegener's granulomatosis
- Sjögren's syndrome (Mikulicz disease, Sicca syndrome)
- Churg-Strauss syndrome
- Microscopic polyangiitis
- Relapsing polychondritis
- Pemphigus vulgaris
- Sarcoidosis
- Ankylosing spondylitis
- Diabetes mellitus type 1 (but only if HSCT is performed within several months following disease onset)
- Sickle Cell Disease can be cured with a similar HSCT procedure utilizing mixed chimerism with a partial-match HLA doner


  1. Now this is some of what I have wanted to see was the past longer term SCT peoples long term results! Thanks for posting!

  2. Thank you for writing about Dr. Burt’s clinical trial. Having recently been diagnosed with CIDP, I would love to take part in the trial, but I’m finding the cost to be prohibitive. I hear it can cost more than $100,000. And of course, my insurance refuses to cover it, calling it “experimental, investigational and unproven.” Forgive me for asking, but how did you finance your participation in this costly clinical trial?