Jennifer Osman
(SCT April 2005) 1st one ever to do it for CIDP
her blog : http://www.caringbridge.org/il/jeno/
Kevin Devery (SCT
Oct 2007)
great videos :
Jerry Burns
Phoenix AZ (SCT Feb 2009)
Tannia Munoz (SCT June
2009)
great videos
Lynn Mac Donald (SCT
Sept 2009)
Alice Dicroce (SCT Oct
2009)
^^ you can find lots more info here about SCT and which diseases they are working on here
Rossana Roa (SCT June
2010)
Jim Danhakl (SCT
March 2010)
Jim’s blog : http://www.alicedicroce.com/untitled-page.html
Sharon Mackwell (SCT
Sept 2010)
Robert Postel (SCT May
2011)
http://www.gofundme.com/Stem-Cell-Transplant-Pre-and-Post-Care
Here is a list of other auto immune diseases being treated by SCT:
Here is a list of other auto immune diseases being treated by SCT:
- Scleroderma (Systemic
Sclerosis)
- Inflammatory Bowel
Disease (Chrohn's disease, ulcerative colitis)
- Systemic Lupus
Erythematosus (SLE)
- Polymyositis -
Dermatomyositis - Evans syndrome
- Hashimoto's thyroiditis
- Chronic inflammatory
demyelinating polyneuropathy (CIDP)
- Graves' disease
- Autoimmune hemolytic
anemia
- Autoimmune blistering
diseases
- Autoimmune
lymphoproliferative syndrome
- Myasthenia gravis
- Psoriatic arthritis
- Wegener's granulomatosis
- Sjögren's syndrome
(Mikulicz disease, Sicca syndrome)
- Churg-Strauss syndrome
- Microscopic polyangiitis
- Relapsing polychondritis
- Pemphigus vulgaris
- Sarcoidosis
- Ankylosing spondylitis
- Diabetes mellitus type 1
(but only if HSCT is performed within several months following disease onset)
- Sickle Cell Disease can
be cured with a similar HSCT procedure utilizing mixed chimerism with a
partial-match HLA doner
Now this is some of what I have wanted to see was the past longer term SCT peoples long term results! Thanks for posting!
ReplyDeleteThank you for writing about Dr. Burt’s clinical trial. Having recently been diagnosed with CIDP, I would love to take part in the trial, but I’m finding the cost to be prohibitive. I hear it can cost more than $100,000. And of course, my insurance refuses to cover it, calling it “experimental, investigational and unproven.” Forgive me for asking, but how did you finance your participation in this costly clinical trial?
ReplyDeleteShawnpaulstewart@yahoo.com